Confidentiality of Data

The Danish Multiple Sclerosis Registry (DMSR) is a scientific research registry and data cannot be accessed for other purposes. The Scientific Steering Committee of the DMSR reviews and assesses the research proposals according to scientific quality, feasibility, value of the project, and alignment with priority areas of the scientific activities of the DMSR. Data are only available to academics after obtaining specific permission and limited to what is necessary for the purpose of the defined scientific project.

After evaluation of the application by the Scientific Committee, a contract will be drawn up for each project, setting out the rules of data property and budget aspects. Access to data will then be provided.

Data analysis are also carried out by the DMSR or an independent third party according to GDPR regulations.