Our story

The Danish Multiple Sclerosis Registry (DMSR) was formally established in 1956, but prospective data collection started already in 1948. It began as a nationwide population-based multiple sclerosis (MS) prevalence survey and has since continued to register new cases of MS.

The target population of the DMSR are all Danish citizens, who have received a diagnosis of MS by a neurologist or a Department of Neurology (including the two Danish MS Rehabilitation Hospitals). The diagnostic criteria were until 1994 those of Allison & Millar; from 1994 the Poser criteria; and from 2005 the McDonald criteria.

From then to now

The DMSR contains data on all Danish Citizens diagnosed with MS from 1921 to the present day. The DMSR is run in collaboration with the Research Program ‘Health and morbidity in Denmark’ at the National Institute of Public Health (NIPH) and is affiliated with Copenhagen University Hospital, Rigshospitalet.

Previously all cases in the DMSR were validated by reports from all neurological departments at Danish hospitals, practicing neurological specialists and the multiple sclerosis hospitals. In 2015 the Danish Multiple Sclerosis Treatment Register (DMSTR) established a new database system, COMPOS®, which enabled online registration of all patients with demyelinating diseases directly.

The DMSR is annually linked with the Danish Civil Registration System (CPR), The Cause of Death Register and The National Patient Register.