Our story

The Danish Multiple Sclerosis Registry (DMSR) was formally established in 1956 and was based on a nationwide prevalence survey, but prospective data collection started already in 1948 and has continued until now.

The target population of the DMSR are all Danish citizens, who have received a diagnosis of MS by a neurologist or a Department of Neurology (including the two Danish MS Rehabilitation Hospitals). The diagnostic criteria were until 1994 those of Allison & Millar; from 1994 the Poser criteria; and from 2005 the McDonald criteria.

From then to now

The DMSR contains data on all Danish Citizens with onset since 1948 and those who were alive in 1949.

In 1996 the Danish Multiple Sclerosis Treatment Register was established, and in 2015 it was integrated into the DMSR, and a new database system, COMPOS, was then introduced enabling online registration of all patients with demyelinating diseases.

The DMSR is annually linked with the Danish Civil Registration System (CPR), The Cause of Death Register and The National Patient Register.