Danish Multiple Sclerosis Registry

Why Registries?

Multiple sclerosis (MS) registries are becoming increasingly important. They play a strong role in epidemiological research and provide useful knowledge in the clinical and public health setting. Registries make it possible to quantify the burden of disease for patients and society and assist health care providers and regulators in decision-making.

Due to advances in statistical methods, registries can perform head-to-head comparisons of disease modifying treatments previously limited to the narrow realm of randomized clinical trials.

Growth

Registries are powerful data sources. Observational studies of MS derived from registries are essential contributors to epidemiology, exploring the natural history of MS and offering insights into ‘real- world’ evidence of effectiveness and safety of disease modifying drugs.

Many MS registries have been established within recent decades. A search in PubMed for articles with the terms ‘multiple sclerosis’ and ‘register’ or ‘registry’ in singular and plural forms in the title resulted in 9 articles before 2000, 31 articles in the 00’s and 166 articles from 2010 to date.

The nationwide Danish Multiple Sclerosis Registry is one of the oldest and largest registries in the world. We have been gathering data since 1948 and are under continuous development to meet the rise in demand of the sector and stay ahead of the game.